Three-fourths of essential tremor patients surveyed have never read or heard about essential tremor prior to their diagnosis. Tremor Action Network provides a list of national and international patient advocacy organizations that offer support for essential tremor and tremor related neurological movement disorders.
Essential Tremor Support
Tremor Action Network Online Support Group
The online support group Tremor, founded in 1998, welcomes individuals, family members and caregivers including health care professionals within and outside the United States, to share and explore essential tremor and tremor related neurological disorders that cause abnormal involuntary muscle movements and contractions. The Yahoo! sponsored health group provides a free exchange of information and ideas that assists individuals in finding peer support.
Band-Aides & Blackboards
Uniquely designed website about growing up with medical problems, including the remembrance by a TAN Board member of being different as a child.
Founded to specifically increase awareness of essential tremor.
International Essential Tremor Foundation
The mission of the IETF is to provide information, services and support to those challenged by essential tremor (ET), to their families and health care providers, as well as to promote and fund ET research.
TAN partners with the IETF to raise awareness of essential tremor.
French-speaking organization which defends the interests of people with essential tremor and wants to make known the importance of this neurological disorder to the general public.
APTES est une organisation francophone qui defend les interets des personnes atteintes de tremblement essentiel et veut faire connaitre l’importance de ce desordre neurologique aupres du grand public. APTES gere un site internet www.aptes.org.
Yahoo! Tremblement Essentiel
Yahoo health group affiliated with APTES. Un groupe de soutien et de discussion.
National Tremor Foundation
United Kingdom charitable trust. Provides information, services and support.
Movement Disorders Support
A source of information about the brain and nervous system that includes a list of more than 400 neurological disorders from the National Institute of Neurological Disorders and Strokes.
Association truly dedicated to helping people find a faster diagnosis and more effective treatment; thus empowering them to achieve a higher quality of life. ST affects approximately 500,000 people in the USA alone.
Dystonia Medical Research Foundation
The DMRF is committed to providing information, support and advocating for the rights of dystonia patients, funding dystonia research, and educating the public and medical community about dystonia.
Focuses on patient care, awareness, collaboration and education for dystonia patients and their families.
Parkinson’s Patients Support Groups
PPSG serves the community of Parkinson’s patients, their care-givers, friends and families of the San Francisco Bay Area and beyond. PPSG shares information about the latest treatments, events, and legislation regarding Parkinson’s disease. PPSG produces a newsletter for both local and general audiences.
Northwest Parkinson’s Foundation
Established to make the Northwest a leading world center of movement disorders knowledge and treatment.
Well Spouse Association
Well Spouse is a national not for profit membership organization which gives support to wives, husbands, and partners of the chronically ill and disabled. Support groups meet monthly. Publishes a quarterly newsletter, Mainstay. For more information email email@example.com.