Welcome to Tremor Action Network

Someone you know has Tremor

Welcome to Tremor Action Network

Someone you know has Tremor


 

Well known people with tremor include: statesman Samuel Adams, sculptor Magnus Berg, politician Oliver Cromwell, actress Katharine Hepburn, and playwright Eugene O’Neill.

Leonardo da Vinci is well known for painting the Mona Lisa and The Last Supper, but as a scientist made an important contribution to neuroscience with his notebooks on different tremors. da Vinci noted:

  • “How nerves sometimes operate by themselves without any command from other functioning or soul. This is clearly apparent for you will see paralytics and those who are shivering and benumbed by cold move their trembling parts such as their head and hands without permission of soul, the soul with all its forces can’t prevent them from trembling.”

     

Leonardo passed away in 1519, and though essential tremor and tremor related neurological movement disorders afflicting millions of children, adults, and next generations have been recognized for centuries, little is known about the etiology.

TAN works to inform the public, policy makers, healthcare professionals, and the media about the quality of life challenges faced by those with movement disorders. Essential tremor and tremor related neurological movement disorders cause abnormal involuntary muscle movements and contractions that affect major life activities.

Tremor Action Network provides boutique services, support and guidance to patients, family members, and caregivers through information, resources, and volunteer advocates.

TAN is Shaking the World to Find a Cure for essential tremor and tremor related neurological movement disorders in the following ways:

  • Diagnosis and treatment options
  • Specialist referrals
  • Clinical trials and studies
  • Research news and updates
  • FAPE education rights and responsibilities
  • ADA disability rights
  • SSI and SSDI eligibility
  • Life with Movement Disorders videos
  • Spikes & Spasms newsletter

Tremor Action Network connects “the bench to the tremor patient” through innovative clinical trials, studies, therapeutic, diagnostic, biopharmaceutical and assistive technology products. TAN promotes research in an effort to help find the cause, treatment, and cure for essential tremor and tremor related neurological movement disorders.

Donations are welcome and are tax deductible.

You will find something new and interesting on essential tremor and tremor related neurological movement disorders
each time you visit TAN.

  • Elan Louis, MD addresses “the essentials of essential tremor,”    perhaps the most common movement disorder, and certainly
    the most common tremor disorder.
    Video feedback: “Wonderful…very encouraging! Immediately shared
    the
    video with my daughter.”

TAKE THE ET MANAGEMENT AWARENESS SURVEY!

Effective management of essential tremor (ET) is dependent on new therapies, such as tolerable ant-tremor drugs that improve ET, non-invasive surgeries, and complimentary and alternative care. Responses to the second Tremor Action Network and HopeNET Essential Tremor Awareness Web Surveysponsored by Allsup will help increase awareness of ET and support current and new research for the treatment of essential tremor.

Enquête sur la sensibilisation à la gestion du tremblement essentiel

Les patients Internationaux diagnostiqués avec un tremblement essentiel (TE) sont invités à participer à l’enquête sur la sensibilisation à la gestion du tremblement essentiel du Tremor Action Network (TAN) et HopeNET.

Nonprofits Seek Feedback from Essential Tremor Patients
Allsup sponsors Essential Tremor Awareness Web Survey™ to support more effective treatments. “With their feedback, we can raise awareness and advocate for more research funding to improve patient options and outcomes.” – Peter Muller of HopeNET

Register Today for the Allsup True Help Disability Web Expo

Tremor Action Netwokr invites tremor patients to attend the free event on SEP 27, that supports people with disabilities and chronic illnesses. Make the most with what you need to know about SSDI, Medicare, Veterans Disability, and connecting with community resources.

New Movement Disorders Journal Breaks From The Mold

University Of Miami Research Study On Essential Tremor

The Laboratory for Functional Imaging of Neurodegenerative Disorders (FIND) is conducting an NIH-sponsored study to understand both the causes of ET and how various treatments work. Up to 50 individuals with ET will be enrolled in this study and will receive a complete clinical evaluation and research MRIs. Unaffected individuals are also needed to serve as controls and will undergo similar testing at no cost. For more information, please call Clinical Research & Coordinator Assistant Lissette Moreno at (305) 243-5827 or email [email protected].

Columbia University Essential Tremor Genetics Study

This tremor study will be looking for a genetic component that may contribute to essential tremor. Participants with 1st degree relatives have the most genes in common. If for example, you have a sibling with tremor who also has a child with tremor, the three of you as 1st degree relatives would be eligible for the study.

  • Study participant feedback: “Exceptionally well-designed study!”

 

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